Our patient associations

 Our goals

Our association is called XLH Belgium, and aims to contribute to the well-being of people with XLH and their relatives. It pursues the following actions:

• Gathering information and explanations about XLH, the treatments and therapies recommended, and all the available means of help.

• Communicating and sharing this information and explanations with people with the disease

• Form a national and international support network

• Representing patients and their families to medical, political, social security and other authorities.

 Our publications

Download here our presentation brochure.